Since we last checked in Cully has continued to pee. He shed fluids so well over the last 72 hours they were able to close his chest this morning! This is a big step forward in a long road to recovery.
We were reminded just how long when the care team recommended that a PD catheter be implanted during the closing procedure. While Cully has discarded a large quantity of fluid and begun to decrease the swelling throughout his body, his kidneys are not functioning at optimum levels. The PD catheter allows for dialysis to be administered, which will aid his kidneys in cleaning the toxins out of his system and assist in pulling the excess fluid from his body. In addition, the PD will allow him to receive additional nutrition and other fluids to help his body recovery.
All of Cully's vital signs remain strong (heart rate, blood pressure, etc), he is alert and tracking people as they talk and work on him, but in order to begin weaning him from the life supporting measures we need for his kidneys to recover. We are hoping for a quiet few days that will allow for his body to begin catching up.
Tillie has had an awesome week, settling right back into her routine at day care with Mary Rose and evenings with Mom and Dad. Earlier this week she brought a picture of her baby brother to show all her friends. Today, lead by Annie, Mary Rose’s daughter, they made Cully a sign!
We are beginning to find our rhythm as well. We are settling into a nice schedule that allows for each of us to spend time at Cully’s beside, while having quality time with Tillie each evening, along with time to rest and decompress a little.
As always, we thank you all for the love and support. We could not do this without each and everyone of your thoughts, prayers and giving.
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