Happy One Week Birthday!

Cully is now one week old and 72 hours post surgery.  He continues to be stable and recovering ever so slowly. 

His vitals have remained strong throughout the majority of the last 24 hours. However, there was a pulmonary concern yesterday evening, which was likely caused by his desire to wiggle his hands and feet, along with the swelling caused by his lower than desired urine output. 

The urine output concerns have raised the possibility that he receive a PD catheter, which would assist in output if necessary.  Overnight and throughout today his urine output has increased into the ranges his team care would like.  And, overall his fluid input v. output remains slightly in the positive, we would like it to be negative (more fluid out then in).  However, the ratio has improved each day since surgery. The care team feels it best to continue his current course of treatment and evaluate if the catheter is needed tomorrow morning. 

We continue to try and develop a schedule for Tillie. Tomorrow, she is going to back to daycare and we will spend the day with Cully. One of us will pick Tillie up and we will meet at home for dinner and bed. Since Friday, the three of us have had dinner and a few hours each morning.  We have been splitting time at the hospital with Cully and at home or out and about with Tillie. We want to do our best to be there for both of our children and think that our new schedule should ensure Ms. Tillie stays a happy toddler through Cully's first surgery and Cully is supported through his recovery.

Carl took Tillie to the park this afternoon.

As always, thank you all for your thoughts and prayers! We very much appreciate the outpouring of support we have received and feel the power of all of you each and very minute.